We also have a closed and private Facebook Meningioma Mommas Group.
Meningioma Mommas is a lifeline, which grew out of an overlooked need for those stumbling around in the dark after being delivered a shocking four word sentence, "You have a meningioma." We are an alternative to the grim statistics, numbers, and percentages all-too-prevalent on the internet. Whether you are newly diagnosed, a veteran survivor, a "momma", a "poppa", or a caregiver, you will never be alone on your meningioma journey.
Each of us has an inner voice.
Mine spoke up very loudly 14 years ago and urged me to listen to my body's signals that something was awry. My inner voice urged me to ask my doctors why I was having frequent migraines. Why I heard swishing in my ears that sounded like waves crashing on the beach. Why I experienced deja vu sensations. Why I couldn't become pregnant.
Instead of finding answers, I was dismissed.
Told I was female.
That is was all in my head.
As a journalist, I had to continue my investigating and find the missing piece to this baffling puzzle. My inner voice and gut instinct finally convinced doctors to order an MRI.
The MRI results delivered the most devastating news of my life — I had a meningioma brain tumor the size of a baseball pressed up against my right optic nerve, carotid artery and sinus cavity. My neurosurgeon was stunned I'd even walked into his office or hadn't already slipped into a coma. My journey continues in Curveball, When Life Throws You a Brain Tumor, available on Kindle http://www.amazon.com/dp/B0084K0FBM and the Nook http://www.barnesandnoble.com/w/curveball-liz-holzemer/1008218577?ean=2940014445788